So most of you know most of what I’m going to say in today’s blog cause I sent out about 100 text messages of my good news, but I’m going to write it all out today.
Thursday was probably my best day since all this hell happened and I got so much good news I was overwhelmed (and I actually stayed up til 10 p.m. for the first time)
I had my first follow up visit my neurologist, Dr. Hormes. I also had a second doctor visit where I had to get my finger pricked for like the 2,000 time, but my level was so good I don’t have to go back until next Thursday (originally I had to go back on Monday).
So the first part of Thursday I got to do my favorite therapy, which was babysitting Tripp, my 2-month nephew. My sister in law, Jessica, had some things she needed to get done, so I took care of Tripp for like 2 hours. I love that little boy and he loves me. I’m the only person he doesn’t get really fussy with, he’s never vomits on me and we’ll just have all sorts of conversations, which he won’t do for other folks (his parents are really jealous). I sang to him a lot (the new song I sang to him was the Itzy Bitsy Spider) and I also did the whole “I’m going to steal your nose.” He laughed and smiled every time I did that – here is a picture of that. We also snuggled us for a while – he’s a huge snuggler! He’s getting so much fun – every time I see him he’s getting bigger and bigger and is learning new things. He’s going to be such a smart boy!
I also did my exercises that Jessica’s friend who is a physical therapist laid out for me. Jessica is a personal trainer so she made sure I was doing everything right. Most of my exercises are for my legs that got really weak from me lying in a hospital bed for so long. But now I’m walking really well and getting up and down stairs pretty easily. Soon I’ll be walking Kennesaw Mountain again J
Then at 11 I had my big appointment with Dr. Hormes. I had about 4 really important questions I needed to ask him and hoped he said yes to all of him. And good news, good news, good news he did.
The first question I asked was could I go to my friend Kelli Kite’s wedding on Saturday in St. Simons. I had already bought my dress, shoes and hat cause I wanted to go so bad. He said he saw no reason why I shouldn’t go. J Originally I was suppose to go with 3 of my good friends, but now my parents are going with me just to be on the safe side. But they are letting me go to the wedding with my friends and they’ll do something else that afternoon (probably watch Auburn play LSU, which won’t be a very pretty game).
My second question was could he help get me out of jury duty. I got called for jury duty about 2 days after I got home from the hospital. I have never been called for jury duty before and couldn’t believe I was called now. Dr. Hormes that it was stupid I got called so he signed the sheet saying I wasn’t able to do jury duty. I would have been a horrible jury, but it could have been funny.
My third question was how much longer did I need to be watched 24/7. Since I’ve been home I had to have someone watch me 24/7. Mainly that is just to make sure I don’t fall down because half my skull is in my stomach. And while I so thankful to the amazing people who have volunteered to come hang out with me, it’s getting a little bit old. I’ve a very independent person (I live by myself and love it) and would just love some alone time. He said I could stop having someone watch me 24/7 pretty much any time. My parents and I talked and they’ll make sure I’m covered this week, but starting next week they slowly start giving me periods of time where I can be alone!!!! It’s not that I’m happy to kick people out of my house, but I’m just really excited to have some of my normal routine back!
My fourth question was when I could go back to work. My HR department won’t let me start working again, even from home, until I get approval from my doctor. Dr. Hormes thought it would be great if I went back to work sooner than later. So, next week I can work part time from home. And then starting the following week I can start working part time from the office. I’m really excited to get back in the swing of things at United Way. I hate that I’ve missed most of campaign season, but I know some amazing folks have filled in for me. I am so grateful to them. I’ll have to have people drive me to and from the office for a couple weeks because it will be at least 3 more weeks before I can start driving again. But I do have a handicap-parking pass which folks are jealous of J
And my last question (and probably the most important) was when are they going to put my skull back in my head. Having part of my skull in my stomach has been the most uncomfortable thing ever!!!!!! The skull shifts all the time. And it is so uncomfortable to ride in a car because of the bumps and the seatbelt pushing on it since the skull is on my left hip. I have an MRI scheduled the morning Nov. 4 to see if I can come of cumodine (they won’t do the surgery until I stop taking that medicine). So a lot of it depends on what the MRI says. But Dr. Hormes thinks I will get a good report since the last two times they’ve stapped my fingers to check how the cumodine was doing it was at the right level. So he thinks I’ll have my second surgery to put my skull back in will be in 5 weeks (which is actually thanksgiving and right after my bday). So I’m really excited to get that taken care of. They have to shave the left side of my head again cause they’ll use the same scare to put things in, but it will be covered up pretty quickly because my hair grows pretty quickly. And they’ll use the same scare on my stomach to pull my skull out of its resting place. I don’t like that scare cause you can see it, but one of my friends said she’ll give me the contact information for a plastic surgeon who can fix it so it’s not visible. That might be my Christmas present. We’ll see.
Dr. Hormes also wants to do a new study with me as the basis. They have still yet to figure out why things were not caught sooner than they were and why a pretty healthy and active 26 year old had a stroke, needed to have emergency brain surgery and was literally at deaths door. And he’s been so amazing at how well I’ve been recovering. So now I’ll be famous in the medical world J
So Thursday was a very good day. Thank you so much to all of you who have continued to pray for me. Our family has been so blessed by so many people and we will be so thankful to you guys for the rest of our lives. I know I think I’ve gone through hell, but so has my family. I mean my parents almost lost their only daughter. They’re trying to get through all of this, plus keep up with their work. We’re all so tired by the end of the day, so I think a trip to St. Simons will be good for all of us. Just to get away for a few days will be good.
Sorry this was another long blog, but there was a lot to update. Plus I didn’t get to write one yesterday morning cause I was busy playing with Tripp J
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